The Voice of Dave Ruckle
The Voice of Dave Ruckle By Chelsea Castonguay Dave Ruckle is a 48-year-old man living with Klinefelter syndrome. He resides in Massachusetts with his wife and two dogs. He shared what it was like learning about his diagnosis after trying to start a family in his late thirties. Early life: When Dave was born, his […]
The Voice of Porter Declan
The Voice of Porter Declan By Kimberly Walker, with Chelsea Castonguay As the old saying goes, “There is nothing people like better than a comeback.” Porter Declan (name and identifying details changed for privacy), a 29-year-old man living in Austin, Texas with Klinefelter syndrome (47, XXY) is the embodiment of this phrase. Porter has survived […]
Why Telling Your Story Matters
Why telling your story matters By Chelsea Castonguay In case we haven’t met yet, I’m Chelsea, the writing director for Living with XXY. I’m also the mother of Noah, who is three years old. Noah is a boy who has a wonderful sense of humor, a gorgeous smile, and he loves all things Donald Duck. […]
Everything is going to be fine: Leah’s story
Leah told her doctor, “If you have to do this again, say ‘Hey! Congratulations you are having a boy and we found this out, but everything is going to be fine.” By Jennifer K Ramsdell Leah struggled for two years to conceive her child. After nearly giving up hope, she was elated to learn she […]
From Termination to Life: Jenn’s story
From termination to life: Jenn’s story By Chelsea Castonguay Editor’s note: This is the first in a series by Living With XXY called “From termination to life.” These stories will focus on the stories of parents who were advised or offered the option to terminate their prenatally diagnosed 47, XXY pregnancy, why they chose to […]
The Voice of Seamus Denison
The Voice of Seamus Denison By Kimberly Walker Editor’s note: In spring 2021, Ryan was approached by Emily, founder of the non-profit Klinefelter Syndrome Australia. She had been asked by the BBC if she knew anyone who would be interested in participating in a documentary series on Klinefelter syndrome, so she passed the information on […]
The Voice of Jake Gray
The Voice of Jake Gray By Kimberly Walker Jake Gray has seen and done things at twenty-six that many of us could only dream of. He’s worked in military intelligence and for the FBI, as well as at Chipotle; so he knows some secrets. With a fascinating past already, this young man is on the […]
Klinefelter syndrome: You are worthy
I jumped on Instagram for some mindless scrolling this afternoon, and was excited to see a new video by comedian Laura Clery. Laura candidly shares her struggles with addiction, motherhood, postpartum depression, and today, her son Alfie’s recent diagnosis of autism. The tone of this video was different than her usual funny clips, and the […]
Life with KS: The voice of Daniel Hellinger
Life with KS: The voice of Daniel Hellinger Daniel Hellinger is a 30-year-old man with mosaic Klinefelter syndrome/KS, living in Seattle, Washington. Diagnosed with 47, XXY in his early twenties, Daniel described what it was like to grow up knowing something was always just a bit off, and what it felt like to discover the […]
