Location: Denver, Colorado – USA
Age: Birth to Young Adulthood
Nemours/Alfred I. duPont Hospital for Children has launched a comprehensive new program for children with X and Y chromosome variations. The eXtraordinarY Kids Clinic brings together a team of experts in medical and therapeutic disciplines to address the unique needs of patients with these common but frequently undiagnosed genetic conditions.
Age: Prenatal to Young Adulthood
We offer a collaborative program for Klinefelter Syndrome (and all X and Y variations). This clinic consists of an interdisciplinary team including endocrinologists, geneticists, genetic counselors, psychologists, developmental pediatricians, reproductive urologists, and nurse practitioners.
Age: All Ages
Helping promote awareness and support happy healthy lives through positive education about XXY / Klinefelter syndrome in New Zealand. Connecting with organizations and associations learning of and sharing XXY / Klinefelter syndrome experience internationally.
Age: Birth to Young Adulthood
Families have a place to turn for help with sex chromosome disorders who have been falling through the cracks for decades. Our clinic meets a tremendous needs
Helping promote awareness and support happy healthy lives through positive education about XXY / Klinefelter syndrome in New Zealand. Connecting with organizations and associations learning of and sharing XXY / Klinefelter syndrome experience internationally.
Cedars-Sinai Pediatric Endocrinology Services offers comprehensive medical services for children and young adults with diabetes and endocrine disorders, from newborns up to 21 years old. Cedars-Sinai provides complete diagnostic and treatment services for the full range of endocrine disorders.
The MassGeneral Hospital for Children Klinefelter Syndrome clinic takes a multidisciplinary approach to providing quality, coordinated care to individuals living with Klinefelter syndrome. We are a subspecialty program, which means that we do not offer routine primary care but instead we offer our patients a comprehensive evaluation, specific to the needs of people with Klinefelter syndrome.
The Weill Cornell Medicine (WCM) Klinefelter Syndrome Care Center offers multidisciplinary care for children and adults with Klinefelter syndrome. Co-directed by Dr. Peter Schlegel of Urology and Dr. Lilian Cohen of Medical Genetics, our program brings together a broad team of experts to offer our patients comprehensive evaluation and subspecialty care. Our goal is to provide the best care based on advances in health information and evidence-based treatment.
The Cleveland Clinic Cares for Klinefelter Syndrome and other XY Variations program provides a wide range of support and intervention for individuals with an XY variation syndrome and their families- from prenatal diagnoses, to adolescence, and into young adulthood. We help coordinate access to experts in a variety of medical and psychological disciplines to support these conditions, with our ultimate goal being to help these individuals to lead independent and healthy lives.
Location: IRELAND
In 2017, my wife Anna and I were trying to have a family. Following two sperm analyses which both came back with ‘zero sperm count’, a visit to a urologist in Ireland and then a second opinion with a urologist in London, I learned that I have an extra X chromosome in my genetic make-up.
Helping promote awareness and support happy healthy lives through positive education about XXY / Klinefelter syndrome in New Zealand. Connecting with organizations and associations learning of and sharing XXY / Klinefelter syndrome experience internationally.
To provide a central location for factual information that is easily digestible to understand, as well as have a central location for support services. Awareness to education, health professionals and the wider community.
